Pengalaman Ibu Dalam Memberi Makan Pada Anak Cerebral Palsy

Authors

DOI:

https://doi.org/10.30643/jiksht.v19i2.385

Keywords:

Cerebral Palsy, Mother, Children, Nutrition

Abstract

Background: Cerebral Palsy is a neuromotor disorder that affects the development of movement, muscle tone and body posture. The prevalence in Indonesia is 1-5 cases per 1000 children diagnosed with CP. This is caused by abnormalities in the developing part of the brain. CP children also experience Oropharyngeal dysphagia which can be characterized by problems in one or all phases of swallowing and chewing food. The aim of this research is to determine mothers' experiences in feeding children with CP. Objective: To find out mothers' experiences in feeding children with Cerebral Palsy. Method: This research is qualitative research with a phenomenological study approach. This research was carried out at YPAC (Foundation for Disabled Children) Semarang. Participants were 3 mothers selected using a purposive sampling technique who had moderate and severe CP children. Data were collected by conducting in-depth interviews using interview guidelines. The results of the interviews were transcribed and analyzed using the Colaizzi method. Results: The characteristics of the participants were 40 years - 46 years and the child with CP was a boy aged 14 years and 2 children with CP were girls aged 14 and 10 years. The study yielded three theree themes: 1) the way mothers process and serve soft and then rough food. 2) The mother's feeling of fear that the child will start eating later than the average age in general. 3) Mother regulates child's food portions. Conclusions: The mother's experience in feeding children with cerebral palsy is very important so that the mother knows how to process and serve food, control the mother's feelings of fear and regulate the child's portions.

Downloads

Download data is not yet available.

References

Allen, J., Zareen, Z., Doyle, S., Whitla, L., Afzal, Z., Stack, M., Franklin, O., Green, A., James, A., Leahy, T. R., Quinn, S., Elnazir, B., Russell, J., Paran, S., Kiely, P., Roche, E. F., McDonnell, C., Baker, L., Hensey, O., … Molloy, E. J. (2021). Multi-Organ Dysfunction in Cerebral Palsy. Frontiers in Pediatrics, 9(August). https://doi.org/10.3389/fped.2021.668544

Molloy, E. J. (2021). Multi-Organ Dysfunction in Cerebral Palsy. Frontiers in Pediatrics, 9(August). https://doi.org/10.3389/fped.2021.668544

Arvedson, J. C. (2013). Feeding children with cerebral palsy and swallowing difficulties. European Journal of Clinical Nutrition, 67, S9–S12. https://doi.org/10.1038/ejcn.2013.224

Bell, K. L., & Samson-Fang, L. (2013). Nutritional management of children with cerebral palsy. European Journal of Clinical Nutrition, 67(S2), S13–S16. https://doi.org/10.1038/ejcn.2013.225

Gayatina, A. K., & Sagala, A. C. (2023). Studi Eksplorasi: Proses Emosi Ibu Dalam Merawat Anak Cerebral Palsy. Jurnal Kebidanan, 12(2), 23–28. https://doi.org/10.47560/keb.v12i2.522

Janah, M., & Ersila, W. (2021). Gambaran Peningkatan Motorik Kasar Setelah Dilakukan Latihan Akuatik Pada Anak Cerebral Palsy : Literatur Review. Prosiding Seminar Nasional Kesehatan, 1, 1713–1720. https://doi.org/10.48144/prosiding.v1i.920

Karmomyanan, C., Hoedaya, A., Sejati, A., & Haryeti, P. (2023). Gambaran Pemenuhan Adl ( Activity Daily Living ) Anak Cerebral Palsy Di Kabupaten Sumedang. Jurnal Kesehatan Tambusai, 4(2), 1331–1337. https://doi.org/10.31004/jkt.v4i2.15242

Kim, H.-J., Choi, H.-N., & Yim, J.-E. (2018). Food Habits, Dietary Intake, and Body Composition in Children with Cerebral Palsy. Clinical Nutrition Research, 7(4), 266. https://doi.org/10.7762/cnr.2018.7.4.266

Kusumah, M. Y. (2017). Pengalaman ibu dalam merawat anak cerebal palsy di Kabupaten Dumedang. Jurnal Sehat Masada, X(2), 162–178. https://ejurnal.stikesdhb.ac.id/index.php/Jsm/article/view/43

Phumudzo raphulu, shirindi modjadji linda, makofane mankwane daisy maria. (2021). Mothers Caring For Children Living With Cerebral Palsy: Suggestions For Psycho-Social Support. 57(3). http://dx.doi.org/10.15270/52-2-952

Pujasari, R. E., Rusmil, K., & Somasetia, D. H. (2020). Hubungan antara Derajat Fungsi Motorik Kasar dan Status Gizi pada Anak Serebral Palsi Tipe Spastik. Sari Pediatri, 21(6), 364. https://doi.org/10.14238/sp21.6.2020.364-70

Rosdiana ika, Hidayah Lia Nor, Lestari Wiwik, Silmia Iktamala. Status Gizi dan Kemampuan Motorik Anak dengan. 2023;14(4):101–7. http://dx.doi.org/10.33846/sf14121

Rempel, G. (2015). The Importance of Good Nutrition in Children with Cerebral Palsy. Physical Medicine and Rehabilitation Clinics of North America, 26(1), 39–56. https://doi.org/10.1016/j.pmr.2014.09.001

Taylor, C., Kong, A. C., Foster, J., Badawi, N., & Novak, I. (2022). Caregivers’ Feeding Experiences and Support of Their Child with Cerebral Palsy. Journal of Child and Family Studies, 31(3), 819–830. https://doi.org/10.1007/s10826-021-02123-x

Trivić, I., & Hojsak, I. (2019). Evaluation and treatment of malnutrition and associated gastrointestinal complications in children with cerebral palsy. Pediatric Gastroenterology, Hepatology and Nutrition, 22(2), 122–131. https://doi.org/10.5223/pghn.2019.22.2.122

Zulfahmi, U., Rahayu, U. B., & Herlinawati, I. (2022). Studi Kasus : Program Fisioterapi Pada Kasus Cerebral Palsy Ataksia Di Klinik Intan Fisioterapi Anak. Jurnal Kesehatan Dan Fisioterapi, 2(3), 16–20. https://doi.org/10.23917/fisiomu.v4i1.15919

Published

2024-10-15

Similar Articles

11-20 of 33

You may also start an advanced similarity search for this article.